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New Guide for Nurses, Physicians, and Other Health Professionals Released!

On behalf of the PLIDA Board of Directors, congratulations to many PLIDA members and IPBC speakers on the release of "Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals.Editors of this resource include:

- Rana Limbo PhD, RN, CPLC, FAAN

- Charlotte Wool PhD, RN

- Brian Carter MD, FAAP

All three editors and Dr. Kathie Kobler, author of the inspiring closing chapter, have been invited to join a plenary panel discussion on perinatal and neonatal palliative care at IPBC 2020 in Chicago!

From the Foreword:

The Handbook of Perinatal and Neonatal Palliative Care is an extraordinarily comprehensive and well-written volume that should be read by every clinician caring for pregnant women and newborns. The case-oriented format of each chapter makes the volume readable and also useful as a resource in complex situations. The book spans all aspects of the clinical and compassionate care of patients, families, and caregivers. Written by experts from all clinical disciplines, including medical and surgical physicians, mental health professionals, nurses, therapists, and chaplains, it shows great respect for and gives voice to affected families and their babies.

Key Features:

  • Provides comprehensive and authoritative knowledge from recognized leaders in the field
  • Addresses a growing need for specific provider resources in neonatal palliative care
  • Covers the clinical and emotional aspects of palliative care for babies and their families
  • Lists abundant resources for effective and compassionate family-centered care
  • Provides case studies with critical thinking questions
  • Includes accompanying video clips of healthcare and family interactions

The following plenary speakers for 2020 have at least one chapter in the book: Beth Perry Black, Kathie Kobler, Marianne Hutti, Meghaan Nguyen, Brian Carter, Charlotte Wool, Rana Limbo. I've attached the book's table of contents as a piece of information. You'll see others listed who have been or are PLIDA leaders. We also have a group of perinatal and neonatal physicians that represent the most prolific researchers and writers in the field.

The book is available for pre-order from Springer Publishing Company. Take a look at the Table of Contents below!

Table of Contents (click here to view as a PDF)

Foreword         Jacqueline M. McGrath
Preface            Rana Limbo, Charlotte Wool, Brian Carter

SECTION 1: UNDERSTANDING PALLIATIVE CARE 

Chapter 1.       Advancing Palliative Care to Perinatal and Neonatal Settings -  Charlotte Wool and Beth Perry Black
Chapter 2.       Neonatal and Perinatal Palliative Care Services and Programs - Steven R. Leuthner and Emilie Lamberg Jones
Chapter 3.       Creating Seamlessness in Palliative Care Services - Sara Munoz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson 

SECTION 2: CARING FOR THE WHOLE FAMILY IN PALLIATIVE CARE

Chapter 4.       Comfort in Perinatal and Neonatal Palliative Care: An Innovative Plan of Care Focused on Relational Elements - Elvira Parravicini and
                        Francis T. McCarthy
Chapter 5.       Suspending Judgment: Being With and Knowing the Family - Terri Major-Kincade, Leslie L. Harris, and Stacy C. Smith 
Chapter 6.       Helping Siblings Connect, Relate, and Say Goodbye - Meghaan R. Nguyen
Chapter 7.       Barriers to Referring Patients for Perinatal Palliative Care - Barthélémy Tosello and Marie-Ange Einaudi

SECTION 3: PLANNING AND DECISION MAKING 

Chapter 8.       Communicating Devastating News - Steven R. Leuthner, Renee D. Boss, and Brian S. Carter
Chapter 9.       Grief and Memories Begin with Diagnosis - Rana Limbo and Marie Walter
Chapter 10.    Anticipatory Guidance: Birth and Advance Care Planning - Jessica T. Fry, Natalia Henner, and Andrea Caruso
Chapter 11.    Difficulty in Predicting Survival: Genetics and Genetic Counseling - Martha Dudek and Rebecca D. Carter
Chapter 12.    “Compatible with Love”: Qualitative Analysis of Decision-making Rationale of Parents Who Continue a Pregnancy Affected by a Life-limiting
                        Fetal Condition - Jesse Wool and Charlotte Wool
Chapter 13.    Perinatal Regoaling in the Face of Serious Illness: Hopeful Thinking, Good-Parent Beliefs, and Uncertainty - Douglas L. Hill,
                       Jackelyn Y. Boyden, Chris Feudtner, David A. Munson 
Chapter 14.    Building and Sustaining Relationships During Pregnancy - Amy Kuebelbeck

SECTION 4: PHYSICAL ASPECTS OF PALLIATIVE CARE: DIAGNOSIS, TREATMENT, AND OUTCOMES

Chapter 15.    Attending to Pain and Suffering in Palliative Care - Marc-Antoine Marquis and Antoine Payot
Chapter 16.    Managing Pain and Discomfort in the Mother - Steven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelly L. Sharp
Chapter 17.    Perinatal Palliative Care in the Context of Fetal or Neonatal Surgery - David A. Munson
Chapter 18.    Palliative Care at the Time of Unexpected Premature Delivery - Lezlie Andersen, Bethany D. Kaemingk, and Christopher A. Collura
Chapter 19.    Compassionate Extubation and Withdrawal of Life-Sustaining Therapies - Jennifer Linebarger and Meghan Tracewski

SECTION 5: SUPPORTING FAMILIES AND CARE PROVIDERS THROUGH THE NUANCES OF PALLIATIVE CARE   

Chapter 20.    Lactation and Breastfeeding in the Context of Perinatal Palliative Care - Diane L. Spatz and Joanna C. M. Cole
Chapter 21.    Ten Ethical Principles for Neonatal Palliative Care - Franco Carnevale, Jacqueline van Wijlen, and Brian S. Carter
Chapter 22.    Spirituality: The Effects of Another’s Pain and Suffering on Care Providers - Darryl I. Owens and Hadley Kifner
Chapter 23.    Assessing Perinatal Grief Intensity in the Palliative Care Setting - Marianne H. Hutti and Lela A. Baker
Chapter 24.    Strategies to Honor Professional Well-Being in Perinatal and Neonatal Care - Kathie Kobler 

Appendix


 

Denise Côté-Arsenault, PhD, RN, FNAP, FAAN is featured in the UNC Greenboro Spring 2019 Research Magazine in an article titled "Life After Loss."

 
Dr. Côté-Arsenault is a PLIDA board member and past IPBC plenary speaker.
 

 


Hear Dr. Denise Côté-Arsenault on perinatal palliative care at ISA2019 Madrid

PLIDA's Board Member, Dr. Denise Côté-Arsenault, will give a keynote talk on perinatal palliative care at ISA2019. Dr.Côté-Arsenault, who has a PhD in nursing from University of Rochester, is the Eloise R. Lewis Excellence Professor of Nursing at the University of North Carolina Greensboro, USA.

Read more: https://www.isa2019madrid.com/hear-dr-denise-cote-arsenault-on-perinatal-palliative-care-at-isa2019-madrid/?fbclid=IwAR1iHcBBZZp4UNfqE86ahoSrD9RbYGtKgVxztKz0oNfGsQq55dU1tXCO8Lo

 


 

 

Announcement: PLIDA Members Published in National Journal

Congratulations to Rana Limbo, PhD, and Marie Walter, RN, who were recently published in MCN, The American Journal of Maternal/Child Nursing.

Rana, PhD, RN, CPLC, FAAN, is senior consultant and associate director of Resolve Through Sharing (RTS). Rana is the past president of PLIDA.

Marie, MS, RN, C-EFM, CPLC, is lead educator and advance practice nurse, RTS. Marie is a PLIDA member, and an IPBC 2018 preconference and concurrent presenter.

Marie’s co-authored contribution, “Clinical Aspects of Miscarriage” and Dr. Limbo’s co-authored contribution, “Respectful Disposition after Miscarriage: Clinical Practice Recommendations” appear in the January-February special topics series on miscarriage.

“Marie’s article on the clinical aspects of miscarriage was selected to be published ahead of print,” Dr. Limbo says. “Additionally, the article was selected for reader continuing education credit.”

Dr. Limbo’s article was also selected to be published ahead of print. Additionally, she served as the guest editor, publishing an editorial titled “Miscarriage.” These things highlight the contribution Resolve Through Sharing® (RTS) makes to the professional world, affecting practice and patient experience far and wide.

While perinatal loss through miscarriage has been a central component of RTS education since its beginning in 1981, national and international attention to the impact of these losses and the need to improve care standards has recently been elevated. It is estimated that 777,000 miscarriages occur in the U.S. each year. Seen as a leader on the bereavement education front, RTS has responded by creating a miscarriage-specific educational opportunity that can serve as a stand-alone or complement to its existing trainings.

“These scholarly articles are especially important as RTS has recently launched a miscarriage-focused initiative we call It’s Never Too Early™ (INTE),” says RTS director Mary Beth Hensel, MBA. “It was premiered at our annual La Crosse National Training event last summer. We have been working with a Gundersen taskforce to review bereavement standards systemwide to identify gaps in care. Miscarriage, particularly occurring in the emergency department, has been flagged as an area where patients would benefit from an expanded application of RTS practice standards.”


 PLIDA's Past President Awarded Lifetime Distinguished Service Award - Humanitarian Category

On behalf of the PLIDA Board, we would like to congratulate PLIDA's past president, Cathi Lammert on an amazing honor! Last weekend Cathi was recognized with a Lifetime Distinguished Service Award - Humanitarian Category from the Greater St. Charles County Chamber of Commerce. 


Cathi's decades of leadership, love and passion for both Share Pregnancy & Infant Loss Support and PLIDA has given support to care providers and parent advocates while continually improving care for families who experience loss during pregnancy, birth or infancy.  

Cathi continues to touch the lives of so many, and we are grateful for her contributions and passion within the perinatal bereavement community. Congratulations Cathi!


 

Announcement: Excellence in Leadership Award 

Congratulations to Dr Rana Limbo on her Award for Excellence in Leadership by the Association of Women's Health, Obstetrics and Neonatal Nurses (AWHONN). Dr Limbo was recognized for her nearly 50 year nursing career and her extensive contributions to Perinatal Bereavement Support through Resolve Through Sharing and PLIDA.

Wisconsin Nurse Receives National Nursing Association’s Excellence Award
Dr. Rana Limbo Accepts AWHONN Award for Leadership

The Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN) today presented its 2017 Award of Excellence in Leadership to Rana Limbo, PhD, RN, CPLC, FAAN, for her near 50-year nursing career for her internationally renowned perinatal bereavement program, Resolve Through Sharing. The award was presented at the AWHONN national Convention in New Orleans, LA.  Continue reading:  http://www.awhonn.org/news/351811/Dr.-Rana-Limbo-Accepts-AWHONNs-Award-of-Excellence-in-Leadership.htm#.WWQdaDksaQV.facebook